DIRFloortime® is a therapeutic approach that emphasizes connection over compliance. A DIR trained provider prioritizes sensory regulation and scaffolds supports so the child can begin to interact with family members, teachers, peers, etc in increasingly more complex and meaningful ways. DIR views relationships as the catalyst for progress in all areas of development. When regulated and meaningfully engaged, a child is better able to take in information and learn new skills. Join occupational therapists Toni Tortora, MS, OTR/L and Brenna McNamee, MS, OTR/L for an introduction to DIR and from ASXL parent Jamie Ordower for first-hand experience.

Join this informal, virtual conversation for parents and caregivers with a loved one who has been recently diagnosed with an ASXL-related disorder (ASXL1/Bohring-Opitz Syndrome, ASXL2/Shashi-Pena Syndrome, or ASXL3/Bainbridge-Ropers Syndrome). This call will include a brief introduction to the ARRE Foundation, an overview of resources helpful to newly diagnosed families, and informal discussion with parent volunteers.

Join this informal discussion led by veteran ASXL dads Bob Walsh, Daniel Ordower, and Justin Wienke about their journey as fathers to children with ASXL related disorders. This is a chance to connect with others who understand the unique challenges and rewards of raising a child with special needs. Share experiences, gain support, and build a community where your voice matters.

Join Dr. Bianca Russell, a clinical geneticist and leading expert in ASXL-related disorders, for an explanation of what it means when your child's report says "variant of uncertain significance (VUS)" or "likely pathogenic variant." She will discuss why variants may be unclear, the evolving naming structure of ASXL-related disorders, and what your child's current diagnosis means in terms of finding where you and your family fit in the ASXL-related disorders community.

Join pediatric dentists Dr. Nancy Hijjawi and Dr. Charles Czerepak (Pine Dental Care) for a presentation on managing dental and oral care in children with complex medical needs, including the impact that oral health can have on other body systems.

Join this informal, virtual conversation for parents and caregivers with a loved one who has been recently diagnosed with an ASXL-related disorder (ASXL1/Bohring-Opitz Syndrome, ASXL2/Shashi-Pena Syndrome, or ASXL3/Bainbridge-Ropers Syndrome). This call will include a brief introduction to the ARRE Foundation, an overview of resources helpful to newly diagnosed families, and informal discussion with parent volunteers.