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Wednesday, February 26 from 2-3pm U.S. Eastern Time (find this time in your time zone): Join Sarah Scott, mom to Sammy and Gemma McKee, mom to Molly, for an informal chat about the joys and challenges of being a parent/caregiver to a child with Shashi-Pena Syndrome (ASXL2). The goal of this session is to promote connection amongst the Shashi-Pena Syndrome family community.
The ARRE Foundation Family Forums are an informal virtual gathering for family members, caregivers, and friends of individuals with ASXL-related disorders. These forums are designed to foster connections within our community and provide an opportunity to share and learn from one another's experiences.