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Newly Diagnosed welcome call - February

Friday, February 21 from 2-3pm U.S. Eastern Time (find this time in your time zone): Join this informal, virtual conversation for parents and caregivers with a loved one who has been recently diagnosed with an ASXL-related disorder (ASXL1/Bohring-Opitz Syndrome, ASXL2/Shashi-Pena Syndrome, or ASXL3/Bainbridge-Ropers Syndrome). This call will include a brief introduction to the ARRE Foundation, an overview of resources helpful to newly diagnosed families, and informal discussion with parent volunteers.

Welcome calls are held via Zoom. Please register to receive the Zoom link.

Welcome calls are held every two months in English unless otherwise noted. For immediate support or support in other languages, please email Sarah Scott at sarah@arrefoundation.org. These calls are not recorded.

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February 4

Webinar: Navigating feeding challenges

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March 3

Family Forum: Transitioning from pediatric to adult care