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The ARRE Foundation announces the appointment of Sarah Scott as the new Family Education and Engagement Coordinator. Sarah brings a wealth of experience with her background in social work and her deep personal connection to the ASXL community.
Bainbridge-Ropers Syndrome (ASXL3) has been added to the U.S. Social Security Administration's Compassionate Allowances program, speeding the path to approval for disability claims for individuals with Bainbridge-Ropers Syndrome.
The ARRE Foundation welcomes Dr. David Bettoun as our first Chief Scientific Officer. Dr. Bettoun brings over 20 years of experience in the biopharmaceutical industry, with a proven track record in drug discovery and development. He will drive our research initiatives to improve the quality of life for individuals with ASXL-related disorders and enhance our efforts in advancing therapeutic discoveries. We are grateful to our community for supporting this critical investment in our leadership and research program.
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