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ASXL syndromes
Newly diagnosed
Syndrome overview
Bohring-Opitz Syndrome (ASXL1)
Shashi-Pena Syndrome (ASXL2)
Bainbridge-Ropers Syndrome (ASXL3)
ASXL Resource Library
ASXL Care Directory
ASXL clinics
Research
Enroll in research
Published research
ASXL-Related Disorders Natural History Study
Research we fund
Research Roadmap
Events
ASXL Research Symposium and Family Conference
Webinars and events
Get involved
Ways to give
Volunteer
Fundraise
Giving Tuesday
Awareness days
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Annual report
Partners
News
Join our team
Undiagnosed?
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ASXL syndromes
Newly diagnosed
Syndrome overview
Bohring-Opitz Syndrome (ASXL1)
Shashi-Pena Syndrome (ASXL2)
Bainbridge-Ropers Syndrome (ASXL3)
ASXL Resource Library
ASXL Care Directory
ASXL clinics
Research
Enroll in research
Published research
ASXL-Related Disorders Natural History Study
Research we fund
Research Roadmap
Events
ASXL Research Symposium and Family Conference
Webinars and events
Get involved
Ways to give
Volunteer
Fundraise
Giving Tuesday
Awareness days
About us
Who we are
Leadership
Annual report
Partners
News
Join our team
Undiagnosed?
Donate
Open Menu
Close Menu
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ASXL syndromes
Back
Newly diagnosed
Syndrome overview
Bohring-Opitz Syndrome (ASXL1)
Shashi-Pena Syndrome (ASXL2)
Bainbridge-Ropers Syndrome (ASXL3)
ASXL Resource Library
ASXL Care Directory
ASXL clinics
Folder:
Research
Back
Enroll in research
Published research
ASXL-Related Disorders Natural History Study
Research we fund
Research Roadmap
Folder:
Events
Back
ASXL Research Symposium and Family Conference
Webinars and events
Folder:
Get involved
Back
Ways to give
Volunteer
Fundraise
Giving Tuesday
Awareness days
Folder:
About us
Back
Who we are
Leadership
Annual report
Partners
News
Join our team
Undiagnosed?
Donate
Travel tips and tricks by ASXL families
Apr 23
Written By
Sarah Scott
Sarah Scott
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Partnering for progress at the Gatlinburg Conference
