Wednesday, January 8 from 2-3pm U.S. Eastern Time (find this time in your time zone): We are thrilled to invite Shashi-Pena Syndrome parents and caregivers to a special webinar where Dr. Vandana Shashi will share the latest findings on Shashi-Pena Syndrome, as featured in the comprehensive GeneReviews article. This is a rare opportunity to learn directly from one of the experts who identified the syndrome, gain deeper insights into current research, and connect with others in our community. Don’t miss out on this enlightening session — your participation could make a world of difference in your journey!

Registration is required to receive the Zoom link for this virtual webinar. This program will be recorded and made available in the ASXL Resource Library.