Wednesday, October 30 from 12-1pm U.S. Eastern Time (find this time in your time zone): Join the October Family Forum on the topic of “Exploring medical specialties that may help your child,” facilitated by parents Lauren O’Neil (ASXL1/Bohring-Opitz Syndrome) and Matina Trussell (ASXL2/Shashi-Pena Syndrome). This informal discussion will focus on different types of highly specialized medical fields and providers that you may not yet know about. We invite you to join us for this informal online gathering where caregivers can share their unique experiences and tips to support children with complex medical needs. It’s a space to exchange ideas, learn from each other, and explore helpful approaches that may make a difference in your child’s care.

The ARRE Foundation Family Forums are an informal virtual gathering for family members, caregivers, and friends of individuals with ASXL-related disorders. These forums are designed to foster connections within our community and provide an opportunity to share and learn from one another's experiences.