Back to All Events
Saturday, April 26th from 2-3pm U.S. Eastern Time (find this time in your time zone): Join Shashi-Pena Syndrome parents and caregivers for an informal chat about the joys and challenges of being a parent/caregiver to a child with Shashi-Pena Syndrome (ASXL2). The goal of this session is to promote connection amongst the Shashi-Pena Syndrome family community.
The ARRE Foundation Family Forums are an informal virtual gathering for family members, caregivers, and friends of individuals with ASXL-related disorders. These forums are designed to foster connections within our community and provide an opportunity to share and learn from one another's experiences.