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Family Forum: ASXL Dad Chat

Wednesday, March 12 from 8-9pm U.S. Eastern Time (find this time in your time zone): Bob Walsh, Daniel Ordower, and Justin Wienke invite you to join an informal monthly discussion about their journey as fathers to children with ASXL related disorders. This is a chance to connect with others who understand the unique challenges and rewards of raising a child with special needs. Share experiences, gain support, and build a community where your voice matters. This call is held monthly on the second Wednesday of every month from 8-9pm Eastern Time.

The ARRE Foundation Family Forums are an informal virtual gathering for family members, caregivers, and friends of individuals with ASXL-related disorders. These forums are designed to foster connections within our community and provide an opportunity to share and learn from one another's experiences.

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March 10

Understanding unclear genetic test results: variants of uncertain significance (VUS) and likely pathogenic variants in ASXL-related disorders

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April 3

Introduction and overview of the Kinesio® Taping Method for neuromuscular disorders