Wednesday, January 29 from 8-9pm U.S. Eastern Time (find this time in your time zone): Join Sarah Scott, mom to Sammy and Amanda Scheirer, mom to Connor, for an informal chat about the joys and challenges of being a parent/caregiver to a child with Shashi-Pena Syndrome (ASXL2). The goal of this session is to promote connection amongst the Shashi-Pena Syndrome family community.

The ARRE Foundation Family Forums are an informal virtual gathering for family members, caregivers, and friends of individuals with ASXL-related disorders. These forums are designed to foster connections within our community and provide an opportunity to share and learn from one another's experiences.