Back to All Events

Family Forum: ASXL2 Shashi-Pena Syndrome family chat

Monday, December 16 from 1-2pm U.S. Eastern Time (find this time in your time zone): Join Sarah Scott, mom to Sammy and Gemma McKee, mom to Molly, for an informal chat about the joys and challenges of being a parent/caregiver to a child with Shashi-Pena Syndrome (ASXL2). Please join us for laughs, stories among friends and maybe a few tears.  The goal of this session is to promote connection amongst the Shashi-Pena Syndrome family community.

The ARRE Foundation Family Forums are an informal virtual gathering for family members, caregivers, and friends of individuals with ASXL-related disorders. These forums are designed to foster connections within our community and provide an opportunity to share and learn from one another's experiences.

Previous
Previous
December 11

Family Forum: ASXL Dad Chat

Next
Next
December 18

Open Steering Committee meeting: ASXL-Related Disorders Natural History Study