Register now for “Ask-a-Researcher” with Dr. Rosanna Weksberg
Join Dr. Rosanna Weksberg and her team to learn about their study of the patterns of DNA methylation, or signatures, associated with changes in the ASXL genes.
ARRE Foundation shares family survey results
The ARRE Foundation conducted a survey of families from February 25 to March 8, 2021. Over 80 families from 7 countries responded to the survey. Feedback from the survey will help inform the ARRE Foundation’s 2021-2023 strategic plan.
ARRE Foundation appoints Amanda Johnson as Chief Development Officer
Johnson will serve as the organization’s first staff member and will oversee fundraising, marketing and communications, and outreach events to support the ARRE Foundation’s mission of advancing research and improving quality of life for ASXL-impacted children.
2018 Inaugural ASXL Research Symposium - a GREAT success!
At the first-ever ASXL Research Symposium, physicians, researchers, providers, and families from around the world gathered at the UCLA Luskin Conference Center to discuss scientific and clinical research of ASXL syndromes and brainstorm ideas for the ARRE Foundation research strategy.