In memory of Camille

Written by her parents, Laetitia and Jerome
November 2019

Our sweet baby girl, Camille, was born on the 12th of January 2019. This was the best day of our lives. We already knew that she would encounter some difficulties in her life because of her cleft palate/lip but we were ready to help her go through it. But that was nothing compare to what really attended us.

After her birth, Camille spent five months in the hospital. Bad news came one after another until we learned about Bohring-Opitz Syndrome. That day, the world collapsed for us and we asked why? Why our baby girl? Why us?

The pain was strong but hope and help came from the last person we expected… Camille. She was so tiny but so courageous. She fought every day of her life and showed us that love was the only thing we needed. She gave us the strength to fight for her and not give up.

Camille was so sweet, with big blue eyes, long hair and lot of hair barrettes to go with. She was too young to speak but she knew so well how to tell you what she liked or didn’t. She didn’t like sun light on her face but loved to be outside and go for a walk in her stroller. She loved trees, she would look at them as if they had something magical. She liked hugs and she spent so much time in my arms when she didn’t want to sleep at night. She didn’t smile a lot but when she did, it seemed like her eyes were smiling, too.

I felt that despite BOS, everything would be ok and I believed we still had a lot of time to spent together.

On October the 2nd, Camille passed away, at almost 9 months, because of a virus her body was too weak to fight. It happened so quickly, it was hard for us to realize she was gone. Absence or lack of her are painful everyday but other things remain, love , hope ...love for the love she gave to us unconditionally, even in the worst days, love for the love we still feel for her which would never fade away. And hope for the hope to see her again one day, hope for better days to come and hope that even if we can’t see her, she will always be with us. Camille is our little angel watching over us and we will love her and cherish her memory for ever.