ARRE Foundation

Events

The ARRE Foundation offers virtual and in-person events to help ASXL families learn, share, and connect. These events include expert talks, social gatherings, and discussion groups for caregivers, like meetups for dads, single parents, and more. Most educational programs are recorded and available anytime in our ASXL Resource Library. Programs are in English unless otherwise noted.

Upcoming events

Events

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Today
  • Welcome call for newly diagnosed families

    Virtual Event

    Join an informal, virtual conversation for parents and caregivers with a loved one who has been recently diagnosed with an ASXL-related disorder (ASXL1/Bohring-Opitz Syndrome, ASXL2/Shashi-Pena Syndrome, or ASXL3/Bainbridge-Ropers Syndrome). Welcome calls include a brief introduction to the ARRE Foundation, an overview of resources helpful to newly diagnosed families, and informal discussion with parent volunteers. Welcome calls are held every two months in English unless otherwise noted. For immediate support or for email support in other languages, please contact Sarah Scott at sarah@arrefoundation.org.

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