What will it actually take to find treatments for ASXL-related disorders — and how close are we? In this session, you’ll meet the scientists and doctors of the ARRE Foundation’s Medical and Scientific Advisory Board and hear directly from them about their work and what it means for your family’s future. Dr. Karen Ho opens with a plain-language overview of the drug development process and where ASXL research stands today.
Panelists: Valerie Arboleda, MD, PhD (UCLA) · Stephanie Bielas, PhD (University of Michigan) · Eric Conway, PhD (University College Dublin) · Rob Illingworth, PhD (University of Edinburgh) · Natasha N. Ludwig, PhD (Kennedy Krieger Institute / Johns Hopkins) · Bianca Russell, MD (UCLA) · Wen-Hann Tan, BMBS (KK Women’s and Children’s Hospital Singapore; Boston Children’s Hospital)
This recording is from the 2026 ASXL Family Conference, June 26-28, Ann Arbor, Michigan, U.S.A.
Published: JUNE 2026
The information presented here is for educational purposes only. This information is not medical advice and should not be treated as such. You should always talk to your or your family member’s health care professionals for diagnosis and treatment, including information regarding which drugs or treatment may be appropriate for you or your family member. We do not represent or warrant that any particular treatment is safe, appropriate or effective for you or your family member. In the event of a medical emergency, you should contact your doctor immediately or call your local emergency service.
