Parents Nikki Crews (ASXL3/Bainbridge-Ropers Syndrome), Julie Lopez (ASXL1/Bohring-Opitz Syndrome), and Jamie Ordower (ASXL1/Bainbridge Ropers Syndrome) share their experiences with therapies outside of the traditional physical and occupational therapies. They discuss equine (horse) therapy, music therapy, and a therapy focused on the brain-body connection called the Anat Baniel Method. They discuss how they accessed these therapies and how these therapies have benefitted their children’s development.
This session was recorded at the 2022 ASXL Family Conference in July 2022 in Los Angeles.
Published: August 2022
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The information presented here is for educational purposes only. This information is not medical advice and should not be treated as such. You should always talk to your or your family member’s health care professionals for diagnosis and treatment, including information regarding which drugs or treatment may be appropriate for you or your family member. We do not represent or warrant that any particular treatment is safe, appropriate or effective for you or your family member. In the event of a medical emergency, you should contact your doctor immediately or call your local emergency service.
