Parents Amy Brady (Bainbridge-Ropers Syndrome), Kathleen Paden (Bohring-Opitz Syndrome), and Paula Phelps (Bohring-Opitz Syndrome) share their experiences with their children’s self-injurious behavior that includes self-injury, including hair pulling, biting, punching, and head banging. Their experiences range from occasional self-injury to pervasive self-injury. They discuss helpful equipment and management strategies for home, school, and in other social settings. This session was recorded at the 2022 ASXL Family Conference in July 2022 in Los Angeles.
Published: August 2022
Additional related resources include:
- Strategies to assess and manage challenging behaviors(video and slides) with Dr. Julia O’Connor recorded at the 2024 ASXL Family Conference
- Care for developmental & behavioral issues related to GI health in neurodevelopmental disabilities (video) with Dr. Andres Jimenez Gomez recorded at the 2024 ASXL Family Conference
The information presented here is for educational purposes only. This information is not medical advice and should not be treated as such. You should always talk to your or your family member’s health care professionals for diagnosis and treatment, including information regarding which drugs or treatment may be appropriate for you or your family member. We do not represent or warrant that any particular treatment is safe, appropriate or effective for you or your family member. In the event of a medical emergency, you should contact your doctor immediately or call your local emergency service.
