Parents of children with ASXL-related disorders share their experiences with different approaches to communication including sign language, augmentative and alternative communication (AAC) devices, yes/no buttons, and interpreting non-verbal cues.
Panelists include:
- Caitlin Calder, Bainbridge-Ropers Syndrome parent
- Michelle Koo, Bainbridge-Ropers Syndrome parent
- Lauren O’Neil, Bohring-Opitz Syndrome parent
- Joanna Bailey, Bainbridge-Ropers Syndrome parent
This presentation was given at the 2022 ASXL Family Conference.
Published: April 2023
The following resources are recommended by panelist Joanna Bailey for families interested in exploring sign language:
- The Gallaudet Children’s Dictionary of American Sign Language
- Authentic ASL words signed by native signers
- ASL story books
- ASL stories and vocabulary
- Sign language learning app
- Visual Language and Visual Learning parent toolkit
- Sign language education with singing and dancing
- Sesame Street ASL version of “If you’re happy and you know it” song
- Books that incorporate pictures, words, sign language and sound boards
The information presented here is for educational purposes only. This information is not medical advice and should not be treated as such. You should always talk to your or your family member’s health care professionals for diagnosis and treatment, including information regarding which drugs or treatment may be appropriate for you or your family member. We do not represent or warrant that any particular treatment is safe, appropriate or effective for you or your family member. In the event of a medical emergency, you should contact your doctor immediately or call your local emergency service.
