The ARRE Foundation is driving progress on two parallel paths – because treatments take time but families need support now. Our strategy tackles both at once:
- Catalyzing and driving research: We’re building the scientific foundation for future therapies through research, data collection, and partnerships with scientists and industry leaders.
- Supporting and engaging families: We’re improving quality of life now by expanding clinical care resources, connecting families with knowledgeable providers, and addressing the most urgent needs.
Both paths work together to accelerate progress, ensuring that families benefit from near-term improvements in care while laying the groundwork for long-term therapeutic breakthroughs.














