ARRE Foundation

Research

Research drives everything we do at the ARRE Foundation. We’re working to accelerate discovery, advancing medical understanding, and moving closer to treatments for ASXL-related disorders — and ASXL families play a vital role in that progress.

Participate in research

Every question we answer brings us closer to better care and potential treatments. Learn how you can get involved in ongoing studies and make a lasting impact.

Published research

Explore the latest clinical and scientific publications and see how each discovery builds toward meaningful progress.

Research Roadmap

Our research strategic plan outlines the bold steps we’re taking to accelerate understanding and develop future therapies. Discover the progress we’ve made so far and what’s next.

ASXL Census

The ASXL Census is our global effort to count everyone with an ASXL-related disorder. By joining, you help show the true size and strength of our community — a critical step in driving research, attracting investment, and building momentum toward treatments.

For doctors and research professionals

Join a growing network of scientists and clinicians working to unlock the mysteries of ASXL-related disorders. Find clinical guidance, resources, funding opportunities, and collaboration tools here.

Join our email list

Sign up to join our email list for our monthly newsletter, updates about research and other important news for the ASXL community.