ARRE Foundation

Get involved

Ways to give

Your donation to the ARRE Foundation is an investment in a brighter future for families with ASXL-related disorders. From one-time donations to including the ARRE Foundation in your estate plans, learn more about how to make a donation that meets your goals.

Volunteer

The ARRE Foundation is powered by volunteers! From micro volunteer opportunities for busy ASXL parents to larger advisory roles, learn more about how you can lend your time and expertise to advancing our mission.

Host a fundraiser

Every fundraiser, big or small, fuels the future of ASXL research. You can be part of our progress by hosting an online or in-person fundraiser, whether it’s for an Awareness Day, GivingTuesday, or a unique idea in your community. The ARRE Foundation is here with tools, tips, and support to make your event a success.

Participate in research

Participating in an ASXL research study is a powerful way to help uncover answers about these rare, complex disorders and move us closer to better care and treatments. Learn more about the research studies you can enroll in to drive progress for the ASXL community.

Events

Welcome call for newly diagnosed families

Welcome call for newly diagnosed families

Friday, November 13, 2026

12pm - 1pmEST

View event

Join our email list

Sign up to join our email list for our monthly newsletter, updates about research and other important news for the ASXL community.