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2026 Bohring-Opitz Syndrome Awareness Day
Mon April 6
On April 6, families around the globe unite for Bohring-Opitz Syndrome Awareness Day. With only 150–200 people diagnosed worldwide, this ultra-rare condition is often overlooked — leading to delayed diagnoses, limited treatment options, and little research funding.
Your voice can change that. Stand with us to honor our loved ones living with Bohring-Opitz Syndrome, raise awareness, and drive critical ASXL-related research forward.